Thursday, August 16, 2007
August 16,
Well my levels have stayed the same they are at 400. So I will not be going back to the hospital until next week. On Monday I go in to have a bone marrow asparate. It is where they will test the bone marrow to see if the leukemia cells are gone or still there. If my levels are high enough they will do a lumbar puncture to make sure the leukemia is still out of my spinal fluids. So YAHOO we get to stay home another weekend,WE are all so excited!!!
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4 comments:
Dear Trent
we just got home from school i had safty patrol this week it was fun i'll write later
from
jaydon
Hey guys how are you holding up? I've still been thinking of you and been reading the posts you've written. Trent, I'm so glad you got to go home for a while. I know it stinks to miss school and stuff but it is probably nice to be home. Harrisons counts have dropped to 350 and so he hasn't been able to go to school for 2 weeks. He has his back poke appointment on Wed. so we will see what they say. Since school started he's only been 3 times. We know what it's like to be home with nothing to do. I know that you are feeling better if you are up and playing. Do you have any side effects from the medicine? Harrison is very sensitive to the vincristine and He has some nerve damage to his feet, especially to his left side. He is getting stronger and hopefully he can finish 2 more years without any problems. Do you like to go to the RTU? It's fun to wake up and get to have treats right after. Is your back sore after? Harrison has a sore back for about 3 days after. How long will you have to be in treatment? I heard something about 5 courses of hospital and meds but that is different than what we do. Harrison did about 9 months of heavy chemo and lots of pills. Now it's easier but we are having trouble keeping his counts up. This will be the 3rd time they have had to stop treatment. He has been sick for one year as of August 16. He still has 2 years and 2 months to go. (maybe longer?)
Note for the mom and dad:
How are you getting along? We have been on home confinement for about 2 weeks so I know it is hard even to go to the grocery store. I started using Albertsons for delivery of groceries. They only charge 10 bucks and they guy will even carry the bags of salt downstairs for me. It helps a bunch. Are you still getting help from neighbors and church? I loved not having to cook for a while. Time goes by and I think people forget what you are dealing with and you may feel like your being left without help. My dad recovered from throat cancer in May just before Harrison was diagnosed so I had my mom to help me with hard times. I just want to tell you that THINGS WILL BE BETTER! Hang in there, time is what your little guy needs and after a year, he'll be riding around with a full head of hair and tons of energy. Like always, you can call me if you think of anything you need. I talked to a mom that had twin boys sick with ALL at the same time. She said after nine months things would be better, she was right.
Emilie Bashore
Emilie,
I'm sorry about Harrison. I hope his counts will go up, I know all about low low counts it stinks to be stuck inside all the time!! Does Harrison have a central line? If so is it the double or under the skin line? It is hard not to be able to swim I use the press 'n' seal to cover my central line when I take a shower. It works great!!! I just wish I could play in the shower for a long time like I used to!! Being home is better than being at the hospital. The hospital I could only stay in the closet size room!! The only effect from the medicine is I get very onery and tired. I'm sorry about Harrison's nerves in his feet. Will it eventually go away or no? I wiil have 5 rounds of heavy duty chemo. Because it is so strong I have to stay in the hospital my immune system right now is only at 300. It has only been that way for 1 1/2 wks so I totally know how Harrison feels. After the 2nd round I have to be in remission or the chemo gets stronger. Overall I am doing good. I don't want to go back in the hospital because I know it will be for 5wks and I am not looking forward to that!! Thanks for writing I wish Harrison luck.
Love Trent
Emilie,
Thanks for writing. I never imagined I would ever be in this position. It totally stinks!! I wish I could take this from Trent and fight it instead of him. He is so strong and will be on top in no time!! We have a ton of support from family, friends, neighbors, and the ward. It takes a great burden off to know so many are willing to step in and help. Right now when we are home I am loving to cook. 5 1/2 wks in the hospital with leftovers is enough to drive me insane!! You are good to have Albertsons deliver, my trip to the grocery store is my saving grace!! I have never been a person to sit still for very long so when or if Jeff is home I tend to run away for a little bit. I think the hardest thing with all of this is the fact that life carries on whether we want it to or not!! I find myself wanting to scream at time to stop until this is all over so we don't miss the other boys growing up or Trent doesn't miss out on to much. I often think the Lord picked the wrong person for this trial. The one thing I have learned is the Lord is always there carrying me & picking me up when I can no longer go on or want to quit. He has made our family so strong & I am so thankful for him and his love. Sorry to go on for so long you caught me on a little pity party night. Talk to you later.
Love Tiffany
Jaydon,
Do you like Saftey Patrol? I think it's cool you are doing it this year!! How is school? Do you like your teacher? Write soon.
Love Trent
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