Well yesterday my temperature went down and things were looking good to go home today. But then the fever came back so dad and I will celebrate New Year's together in the hospital. We are so thankful for the support and help that we have received this year. There have been so many blessings. We are praying, like everyone else, that the New Year will be better than the last. Love, Trent.
UPDATE: Well come to find out my temperature did not go back up. A different doctor had a different set of rules about going home than the doctor that saw us yesterday. Dad had a "discussion" with the nurse practioner and it ended up with me being released. Mom and dad made a new record on how fast my room could be cleaned out and us checked out. I got home about 5:30 PM. Love, Trent.
Saturday, December 29, 2007
Well I'm still in the hospital and it looks like it will be at least another day before I can go home. The good news is that nothing has grown in my blood cultures but the bad news is that my fever has not gone away. They will not let me go home until the fever comes down and we find out why it went up. I wish I was home but things are not that bad here right now. At least I was home for Christmas. Thank you. Love, Trent.
Thursday, December 27, 2007
Christmas was awesome. I had so much fun at home with my family. I was very spoiled and loved!! I hope everyone had a wonderful Christmas! I was able to go play in the snow last Friday. I begged mom for days to play in it she finally gave in and bundled me up! I went to clinic yesterday my ANC was up to 4000 that is so good. The Dr. thinks I am doing great and very happy. Today was a fun day we played all our new toys today. Mom is still building all our lego toys we got but she loves it! Me, Dad, Uncle Alan, Brad & Nate all went out tonight and played air soft guns. It was so fun but very very cold. About 6:30 I came in from outside shivering, I had a fever of 37.7 celcius. At 7:30 my fever went to 38.3 celcius so we called the hospital and I have to go in tonight. We hope I can come home tommorrow but we will see. They will run tests and try and get my fever to go down. I hate the hospital and was crying when I found out I had to go back. Well talk to you later.
Thursday, December 20, 2007
Wow, it's been a fun week. I am so glad to be home I am playing with Brad & Nate and we are having a blast. I am very excited to be home for Christmas, it's going to be a great Christmas!!!!! I went for my first clinic visit on Tuesday and everything checked out ok. My platlets and red blood cells are holding their own. I still throw up 1-4 times a day but they told me that I would probably be doing that for months, so I am ok. The Graft vs. Host has not shown up yet but they will continue to watch closley. They are making me take one more cyclosporine pill, they are capsules and I hate them also I am back on my Septra pill which is to prevent phenmonia. So on average I am taking 16 pills a day, that is the worst about being home I can't get the meds in my central line I have to swallow!!! Other than that I just can't wait for Mom to cook a turkey so I can finally get a drumstick! Well hope everyone is ok and doing well. Merry Christmas
Thursday, December 13, 2007
I'M HOME!!!!!!! The doctors came in this morning and said we are going home. I could not wait. I'm still throwing up and will have to be on TPN(IV food) at home but it is HOME. The pictures are of from the first day I entered the hospital on July 2nd and today as I left. Hopefully I will never have to go back. I will have several appointments per week but they will all be out-patient and no more long stays. This stay was five weeks to the day. I still have to be cautious and cannot have lots of visitors or be around crowds. Please call before stopping over and talk with mom and dad first please. We will continue to keep the blog updated. It's been a long five months, thank you for everything that has been done. Love, Trent.
Wednesday, December 12, 2007
Hooray, today my ANC was 800 today so that means I engrafted yesterday. Brad won the bet, he is so excited. I am so ready to go home. I am doing ok taking my pills, I usually throw up right before I take them and shove them down the second I am done throwing up. It's not a wonderful system but it works. Grandma & Grandpa came to sit with me today cause mom was home with my aunts cleaning the house for me to come home. She says the house is waiting for me so I am praying tommorrow or Friday. Tonight we had a scare the day nurse told me I could eat lettuce but we have been told to not eat any lettuce cause there is to many germs and fungus on it. I ordered it cause she said I could but when I got it I had a feeling not to eat it so I didn't. Mom & Dad were very happy I did not eat it and hopefully we get that worked out. Other than that everything is ok. Thanks for everything.
Tuesday, December 11, 2007
I did it. My ANC was 900 today. If my levels are over 500 tomorrow then the doctors will consider me as being grafted. Today the focus was to get me to take (and keep down) my medications. It has been okay so far, some progress and some work still. Well it looks like Brad is going to win the engraftment pool. The nurses have been "training" Mom and dad so that we can leave as soon as the doctors give the okay. Yesterday I was playing with some bath foam soap and tried to be Santa. Keep up the hope. Love, Trent.
Monday, December 10, 2007
Today is a great day. My ANC is 300 party!!! The nurse said that my red blood cells and platlets look great and that they are forming a lot of cells on their own so I am very excited. The Dr's say that I will more than likely be home by the end of the week. They think I will have an ANC of 500 tommorrow so let's hope! They switched all my medications to be taken orally. I am having a hard time taking them without thinking I will throw up. I have taken some and thrown some up and kept some down. Today a few Jazz players showed up to visit for a little bit it was Mehmet Okur and Carlos Boozer (sorry if mom spelled the names wrong). They are pretty big in person, it was very nice of them and fun to see them. Brad is jealous I got to meet them but he will be ok. Hope all is well.
Sunday, December 9, 2007
Well I'm still feeling good and enjoying being unhooked from my IV's for a good portion of the day. My levels are not cooperating like mom and dad would like. I'm still at 200 which has been the same for the last three days. I keep looking out my window and want to play in the snow. The nurses said that I may be able to play in the snow when I go home if I'm careful. Have a great day. Love, Trent.
Friday, December 7, 2007
Today was a fun day. I was unhooked from all of my IV's for most of the day. My ANC went down a little to 200 today but hopefully we will hit the magic 500 mark tomorrow. I also did not have any anti-nausea drugs from noon to 10:00 today which is great because I also did not throw up. I had fun moving about my room and playing. I actually ate a bag of potato chips and half a peanut butter sandwich. We've been here over a month now and I'm getting tired of the routine and want to do my own thing. Tonight I wanted to go out and play in the snow. Thanks for the support. Love, Trent.
Thursday, December 6, 2007
Today has been a great day! The Dr's came in this morning and told us that my white count is at 700 and my ANC is at 300. I am so excited. They said it might go back down and come back up but it might just go up. Mom asked the Dr's how they know when the engraftment has taken place and they said that if my ANC stays at 500 for two days the 1st of the two days will be the engraftment day (if that makes any sense). So we are hoping that I will reach that in the next few days! So Irish the nurse, Grandma & Grandpa Hansen & Mom are in the running for the bet on the engraftment day so we will see. I feel so good today I have been up and playing and having fun. I just have to eat, but I do not have an appetite. Well thanks for everything.
Tuesday, December 4, 2007
Well today has not been that fun. I did not get to sleep that much last night because I kept waking up to throw up. The doctors said that I would feel pretty bad once engraftment starts and it appears that it has. Today has been filled with sitting in bed and throwing up. This is supposed to be a good sign but it is not fun. Thank you. Love, Trent.
Monday, December 3, 2007
Today the dr's came in about 9:00 and gave us some good news. They said the graft is starting to take place. My white blood count is at 200 today. We are so excited. I really want to be home by the end of the week but mom just laughs they say once I am fully grafted it will take another week till I can go home. I have to be 500 or over, take all my meds, and I have to be eating, goodbye tpn. I am feeling a little better. They took me off the pain button and I have been able to go about 8 hrs without any pain meds so we will see. Today for a few hours I was free of all the tubes so I was able to run without taking the big IV stand. I love being free!! Hope for the best.
Sunday, December 2, 2007
Mom made up some gingerbread men for my tree and we went to paint them but the smell made me sick. So mom finished the ornaments and I had to wait until I was feeling good to stand next to it and take the smell. The other day I played a practical joke on mom. Mom was taking a nap so I took a "soaked" washcloth and put it gently on her neck. Mom "FREAKED" out and threw it across the room. She then fell back asleep while I laughed. We are trying to have fun. Love, Trent.
Saturday, December 1, 2007
Well as you can see I'm still having fun in between throwing up. Today is two weeks since the transplant. Hopefully I will start to engraft this week. We don't know what to expect once engraftment takes place, because that is when the rejection process will start. I am still throwing up several times a day. Thank for everything. Love, Trent.