Monday, December 31, 2007

December 31st: day +44

Well yesterday my temperature went down and things were looking good to go home today. But then the fever came back so dad and I will celebrate New Year's together in the hospital. We are so thankful for the support and help that we have received this year. There have been so many blessings. We are praying, like everyone else, that the New Year will be better than the last. Love, Trent.

UPDATE: Well come to find out my temperature did not go back up. A different doctor had a different set of rules about going home than the doctor that saw us yesterday. Dad had a "discussion" with the nurse practioner and it ended up with me being released. Mom and dad made a new record on how fast my room could be cleaned out and us checked out. I got home about 5:30 PM. Love, Trent.

Saturday, December 29, 2007

December 29th: day +42

Well I'm still in the hospital and it looks like it will be at least another day before I can go home. The good news is that nothing has grown in my blood cultures but the bad news is that my fever has not gone away. They will not let me go home until the fever comes down and we find out why it went up. I wish I was home but things are not that bad here right now. At least I was home for Christmas. Thank you. Love, Trent.

Thursday, December 27, 2007

December 27th day +40

Christmas was awesome. I had so much fun at home with my family. I was very spoiled and loved!! I hope everyone had a wonderful Christmas! I was able to go play in the snow last Friday. I begged mom for days to play in it she finally gave in and bundled me up! I went to clinic yesterday my ANC was up to 4000 that is so good. The Dr. thinks I am doing great and very happy. Today was a fun day we played all our new toys today. Mom is still building all our lego toys we got but she loves it! Me, Dad, Uncle Alan, Brad & Nate all went out tonight and played air soft guns. It was so fun but very very cold. About 6:30 I came in from outside shivering, I had a fever of 37.7 celcius. At 7:30 my fever went to 38.3 celcius so we called the hospital and I have to go in tonight. We hope I can come home tommorrow but we will see. They will run tests and try and get my fever to go down. I hate the hospital and was crying when I found out I had to go back. Well talk to you later.

Love Trent

Thursday, December 20, 2007

December 20th day+33

Wow, it's been a fun week. I am so glad to be home I am playing with Brad & Nate and we are having a blast. I am very excited to be home for Christmas, it's going to be a great Christmas!!!!! I went for my first clinic visit on Tuesday and everything checked out ok. My platlets and red blood cells are holding their own. I still throw up 1-4 times a day but they told me that I would probably be doing that for months, so I am ok. The Graft vs. Host has not shown up yet but they will continue to watch closley. They are making me take one more cyclosporine pill, they are capsules and I hate them also I am back on my Septra pill which is to prevent phenmonia. So on average I am taking 16 pills a day, that is the worst about being home I can't get the meds in my central line I have to swallow!!! Other than that I just can't wait for Mom to cook a turkey so I can finally get a drumstick! Well hope everyone is ok and doing well. Merry Christmas

Love Trent

Thursday, December 13, 2007

December 13th: day +26

I'M HOME!!!!!!! The doctors came in this morning and said we are going home. I could not wait. I'm still throwing up and will have to be on TPN(IV food) at home but it is HOME. The pictures are of from the first day I entered the hospital on July 2nd and today as I left. Hopefully I will never have to go back. I will have several appointments per week but they will all be out-patient and no more long stays. This stay was five weeks to the day. I still have to be cautious and cannot have lots of visitors or be around crowds. Please call before stopping over and talk with mom and dad first please. We will continue to keep the blog updated. It's been a long five months, thank you for everything that has been done. Love, Trent.

Wednesday, December 12, 2007

December 12th day +25

Hooray, today my ANC was 800 today so that means I engrafted yesterday. Brad won the bet, he is so excited. I am so ready to go home. I am doing ok taking my pills, I usually throw up right before I take them and shove them down the second I am done throwing up. It's not a wonderful system but it works. Grandma & Grandpa came to sit with me today cause mom was home with my aunts cleaning the house for me to come home. She says the house is waiting for me so I am praying tommorrow or Friday. Tonight we had a scare the day nurse told me I could eat lettuce but we have been told to not eat any lettuce cause there is to many germs and fungus on it. I ordered it cause she said I could but when I got it I had a feeling not to eat it so I didn't. Mom & Dad were very happy I did not eat it and hopefully we get that worked out. Other than that everything is ok. Thanks for everything.

Love Trent

Tuesday, December 11, 2007

December 11th: day +24

I did it. My ANC was 900 today. If my levels are over 500 tomorrow then the doctors will consider me as being grafted. Today the focus was to get me to take (and keep down) my medications. It has been okay so far, some progress and some work still. Well it looks like Brad is going to win the engraftment pool. The nurses have been "training" Mom and dad so that we can leave as soon as the doctors give the okay. Yesterday I was playing with some bath foam soap and tried to be Santa. Keep up the hope. Love, Trent.

Monday, December 10, 2007

December 10th day +23

Today is a great day. My ANC is 300 party!!! The nurse said that my red blood cells and platlets look great and that they are forming a lot of cells on their own so I am very excited. The Dr's say that I will more than likely be home by the end of the week. They think I will have an ANC of 500 tommorrow so let's hope! They switched all my medications to be taken orally. I am having a hard time taking them without thinking I will throw up. I have taken some and thrown some up and kept some down. Today a few Jazz players showed up to visit for a little bit it was Mehmet Okur and Carlos Boozer (sorry if mom spelled the names wrong). They are pretty big in person, it was very nice of them and fun to see them. Brad is jealous I got to meet them but he will be ok. Hope all is well.
Love Trent

Sunday, December 9, 2007

December 9th: Day +22

Well I'm still feeling good and enjoying being unhooked from my IV's for a good portion of the day. My levels are not cooperating like mom and dad would like. I'm still at 200 which has been the same for the last three days. I keep looking out my window and want to play in the snow. The nurses said that I may be able to play in the snow when I go home if I'm careful. Have a great day. Love, Trent.

Friday, December 7, 2007

December 7th: day +20

Today was a fun day. I was unhooked from all of my IV's for most of the day. My ANC went down a little to 200 today but hopefully we will hit the magic 500 mark tomorrow. I also did not have any anti-nausea drugs from noon to 10:00 today which is great because I also did not throw up. I had fun moving about my room and playing. I actually ate a bag of potato chips and half a peanut butter sandwich. We've been here over a month now and I'm getting tired of the routine and want to do my own thing. Tonight I wanted to go out and play in the snow. Thanks for the support. Love, Trent.

Thursday, December 6, 2007

December 6th- Day+19

Today has been a great day! The Dr's came in this morning and told us that my white count is at 700 and my ANC is at 300. I am so excited. They said it might go back down and come back up but it might just go up. Mom asked the Dr's how they know when the engraftment has taken place and they said that if my ANC stays at 500 for two days the 1st of the two days will be the engraftment day (if that makes any sense). So we are hoping that I will reach that in the next few days! So Irish the nurse, Grandma & Grandpa Hansen & Mom are in the running for the bet on the engraftment day so we will see. I feel so good today I have been up and playing and having fun. I just have to eat, but I do not have an appetite. Well thanks for everything.

Love Trent

Tuesday, December 4, 2007

December 4th: day +17

Well today has not been that fun. I did not get to sleep that much last night because I kept waking up to throw up. The doctors said that I would feel pretty bad once engraftment starts and it appears that it has. Today has been filled with sitting in bed and throwing up. This is supposed to be a good sign but it is not fun. Thank you. Love, Trent.

Monday, December 3, 2007

December 3rd- day +16

Today the dr's came in about 9:00 and gave us some good news. They said the graft is starting to take place. My white blood count is at 200 today. We are so excited. I really want to be home by the end of the week but mom just laughs they say once I am fully grafted it will take another week till I can go home. I have to be 500 or over, take all my meds, and I have to be eating, goodbye tpn. I am feeling a little better. They took me off the pain button and I have been able to go about 8 hrs without any pain meds so we will see. Today for a few hours I was free of all the tubes so I was able to run without taking the big IV stand. I love being free!! Hope for the best.

Love Trent

Sunday, December 2, 2007

December 2nd: Day +15

Mom made up some gingerbread men for my tree and we went to paint them but the smell made me sick. So mom finished the ornaments and I had to wait until I was feeling good to stand next to it and take the smell. The other day I played a practical joke on mom. Mom was taking a nap so I took a "soaked" washcloth and put it gently on her neck. Mom "FREAKED" out and threw it across the room. She then fell back asleep while I laughed. We are trying to have fun. Love, Trent.

Saturday, December 1, 2007

December 1st: day +14

Well as you can see I'm still having fun in between throwing up. Today is two weeks since the transplant. Hopefully I will start to engraft this week. We don't know what to expect once engraftment takes place, because that is when the rejection process will start. I am still throwing up several times a day. Thank for everything. Love, Trent.

Sunday, November 25, 2007

November 25th: day +8

Well things have been the same. Each day is filled with lots of meds, bloody nose, throwing up, mouth and throat sores, and just sitting around. Here are a few pictures, the first is of my new bone marrow before they gave it to me. Then there is how I currently spend my day, and that it playing with Legos. Last is a picture of my eye. The other day I was throwing up while my platelets were low and I burst a blood vessel in my eye. It does not hurt but it does not look very good. Thank you for everything. Love, Trent.

Saturday, November 24, 2007

Saturday November 24th

Hope everyone had a happy Thanksgiving. I slept most of the day. I could not get any turkey down so I had the tpn. Yum, Yum. The week has been ok I got the pain button so I can use it 6 times an hour. It is very nice and I am able to keep my pain ok. Before I forget GO COUGARS!!! 17-10 I was sleeping through most of it but Mom listened to it and would scare me when she screamed. It sounds like it was a great game. Sorry Utah fans we know the best team won!!! My body is doing ok thank goodness there has been no infection. The worst is I throw up about once a day it stinks but they say that it's normal for bone marrow patients. Nothing much is new hope everyone is doing good and is off to a great holiday season.

Love Trent

Monday, November 19, 2007

Monday November 19th

Well the mouth sores are here and getting worse each day!!! I told mom it feels like someone is taking a knife to my throat it hurst so bad!! They say it will be like this maybe a little worse until the bone marrow takes. They had me taking a pill for pain but it hurts to bad so every two hours they are giving me morphin and that works great. I am so hungry but everything I eat hurts so bad. I finally found some marshmellows and those don't hurt so I am living off them right now. Me and mom are trying to keep busy. I am pretty tired and feel icky most of the day so we talk a lot. Hope everyong has a great Thanksgiving week.

Love Trent

Saturday, November 17, 2007

November 17th: bone marrow birthday

Well today was the big day. It started off with my waking up and throwing up right away. I then went back to sleep until eleven and then woke up throwing up again. The donor got to the procedure late so the bone marrow missed the plane last night. The courier(volunteer) apparently drove to the nearest city with an airport to catch a flight this morning. The marrow got to the hospital about 1o:00 and then had to be prepared. I got the tranplant at 4:45. Everything has gone good, no reactions as of yet. My room was full of people today for my bone marrow birthday party. More mouth sores are starting to form and are supposed to get worse over the next three weeks until the bone marrow begins producing new cells. Thank you to everyone who came to visit in the last two days and for your prayers. Love, Trent.

Thursday, November 15, 2007

November15th: day -2 in process

I am so tired today. The chemo does 2 things to my body, one part kills all fast growing cells the other part goes to my kidney's and can damage them. So they put me on a ton of fluids so I can pee all the chemo out and so it won't damage my kidney's. Because of this they make me pee every 2 hours, again. I hate waking up in the night to pee. I gave mom & the nurse a hard time because I was so tired and just wanted to sleep. Mom would have let me if the nurses were not there, but I know they are just doing what is best!!! So today is the last day of chemo thank goodness!!! I am so ready for a rest day it's not even funny! My throat hurts because of the mouth sores that are starting to form so I am not eating hardly anything. Tommorrow night they will probably put me on TPN (which is nutrition in my line) because I am not taking in enough calories. I asked the nurse why they didn't do it sooner cuz mom and dad kept trying to make me eat. She laughed. I want to tell everyone thanks for fasting and praying for me.

Love Trent

Wednesday, November 14, 2007

November 14th: -3 day in process

Well I finished radiation yesterday with flying colors. Today I started chemo and it's been kind of hard. I was ok for the first few hours but after that the nausea started coming. It's been a tough day but I am excited I only have one more day left. Mom and I made Thanksgiving decorations for my room, it's very fun. Well thanks again for everything.

Love Trent

Sunday, November 11, 2007

Sunday 11th: -6 day in process

Well today me and dad went a little crazy the nurse had to come and tell us to be quiet because a little boy in the room next to me is very sick and needed to sleep. So we tried the rest of the day to be quiet!!! I threw up this morning after I took my pills, UGH I hate to throw up!!! Other than that it's been a good day!!

Love Trent

Saturday, November 10, 2007

November 10th: -7 day in process

Well I'm now half way through with the radiation, only three more days left. Here are some pictures of the machine and how I look after being hooked up. Yesterday I slept most of the afternoon and was nauseated again. Today mom and dad are wondering if the machine even worked because I have been playing all day long with no problems. Thanks for the support. Love, Trent.

Thursday, November 8, 2007

November 8th : day -9 in process

Well I made it through the day but it was not that fun. It started early because we had to check-in to the hospital first. They then drove us to the Huntsman Cancer Institute for the radiation treatment. It took about an hour in a half because they had to fit the lung shields they had made before we could start treatment. I then had to stand still while the machine sent the radiation into me. I had to stand for fifteen minutes while they did the front of my body and another fifteen minutes while they did the back of my body. I was tired after it was finished and nauseated. I slept for several hours this afternoon and they threw up several times tonight. Five more days of radiation to go. November 17th will be my "bone marrow birthday." I was happy when I found out I will now have two birthdays. The donor will be harvested on November 16th and I will get it on November 17th. Thanks for all the prayers. Love, Trent.

Update for Trent

The time for marrow is almost here. Trent ,Tiff & Jeff packed up and headed for PCMC this morning.****The latest update is the trtansplant has been moved up, they are starting everything today. He will get the bone marrow on Sat the 17th....

We are asking all to join us in prayer and fasting on Thur the 15th. Everyone has been so wonderful and I know Jeff and Tiff have felt of your love and our so very touched.

I thought it would be fun to let them share the love with the hospital and others so, I collecting M&M's for the them to pass out to the nurses and others in his unit. In honor of the "Marrow Man" donor and our little super Marrow Man. You can drop them off on the porch or bring them to me by Thursday night the 15th.

any ? call 254-6080 or email

Jenni Goodrich

Tuesday, November 6, 2007

November 6th

Well today I went in for some tests and was told that the bone marrow transplant process will start this Thursday. It was not what we were expecting. I spent all day today and will spend all day tomorrow going through tests. Thursday morning we will go into the hospital for six days of radiation, 2 days chemo, one day to rest, and then get my new bone marrow. Tonight we set up the Christmas tree and tomorrow we are having Thanksgiving dinner. Things are moving quite fast right now. Love, Trent.

Monday, November 5, 2007

November 5th 2007

I am doing good. This weekend I had a blast shooting my air soft gun and playing games with the family. Today I am getting a little sniffle so we hope it will go away soon!!! The bone marrow nurse called today and told us that the donor has been contacted and is willing to do it on the 21st of November. So I am staying home till the 21st. They then will do 10 days of total body radiation and chemo. On November 30th I will recieve the bone marrow transplant. I have to go up to Primary's to have some tests run. So the next few days me and mom will be up there for an echo, ekg, pulminary function test, and hearing test. It will be busy but I get to come back home so I am happy. I went to the dentist today to make sure I did not have any cavities, they do not want a cavity to go bad while I am in the bone marrow transplant. I have one, but the dentist is not to concerned so we will wait to see if it needs to be filled now or can wait till later. Well hope everyone is doing well.

Love Trent

Friday, November 2, 2007

November 2, 2007

I AM IN REMISSION!!! The 3rd round did it's job well!!! Dr. Barnette called about 5:00 and told us the good news. Mom ran out of her room yelling and gave me a great big bear hug. I then started screaming along with her and when we both calmed down I asked her "Mom what is remission"? We are totally having a party tonight!!! The plan now is for some blood work this coming week and then go back to the hospital to prepare for the bone marrow transplant a week from Monday. Thank you for all the prayers and for the fast. Love, Trent.

Thursday, November 1, 2007

November 1st

Well things are still going good. I stayed home with dad last night and we played with the air soft guns in the backyard. I couldn't go out for Halloween so I chose to play with dad. We went to the hospital today for a bone marrow aspirate and they slipped in a lumbar punch also. The Dr. is supposed to call us tomorrow afternoon with the results and what the next step will be. For now no information on when we will have to go back to the hospital other than we will probably be in for Thanksgiving. Love, Trent.

Monday, October 29, 2007

October 29th

As you can see I've been having fun. Nothing much is new. I go in on Thursday for a bone marrow aspirate. It will tell us exactly where we are at and what the third round of chemo did. We are having a special fast on Thursday(11-01) if anyone would like to join. Love, Trent.

Thursday, October 25, 2007

October 25th

Well we had our appointment today and the Dr. is "cautiously optimistic." My overall counts actually went back to zero but the "monocytes" were going up. This is what made the Dr. happy because they have not gone up since we were originally admitted. I will have another bone marrow aspirate next Thursday and that will tell us how we did on the last chemo round. It will depend on those results if we start a fourth round or go to bone marrow transplant. So for now we stay home as long as I don't get sick or my levels change drastically. I have not been wasting any time and am trying to play with everything I can. We borrowed my Uncle's Wii last night and I played with dad. We played boxing, baseball, and bowling. We got worn out from all the moving. I was ready for bed when we were done and we did not start until 10:00 PM. Have to go, I have brothers to chase and mess with. Love, Trent.

Wednesday, October 24, 2007

October 23rd - I'm home

Well they sent me home today. We have to go back for an appoitment on Thursday morning and hopefully they will have decided what we are doing next. It is still up in the air if we are going for a fourth round of chemo or going for the bone marrow transplant next. As soon as a got home I started running around the house and playing with Brad and Nate. My body is not used to being up and around so my legs and feet hurt after awhile. We are hoping we get to stay home through the weekend but we will see. Mom has to give me IV antibiotics three times a day still but we are home. Love, Trent.

Monday, October 22, 2007

October 22nd

Dr. Afifi came in today and said that she would try to get me home tommorrow. She said I have been ready for a few days but they are nervous to send me home because this chemo was so strong and some kids have major problems. Also a few years ago with this chemo they waited until the ANC level was up to 200 but since then have let kids go when it was less. They just want to make sure I will be ok. As of today my ANC is still 0 but my white blood cells and nutrafills are going up each day. I made Mom pack up and take most everything off the walls. I want to go home!!! So all they have to do is say the word and 10 min later we can load me up and go home. I've decided to be Harry Potter (I am really just excited to have a magic wand) and wear my Halloween costume out of the hospital because I am so excited about it!! Well pray hard I will go home tommorrow.

Love Trent

Sunday, October 21, 2007

October 21st

Well things have been going better for the last couple of days. My levels are starting to come back up and the doctor says that I could go home today but they are going to keep me for a couple more days. They are taking me off of two of the antibiotics to see how I do and make sure the fevers don't come back before they send me home. Maybe by the middle of the week I can go home for a few days. I'm still not eating or drinking. I have had to be hooked up to my i.v. this entire stay because I won't drink anything. Friday night my Aunt Amy stayed with me and brought me pizza. All I ate that night was a few breadsticks. Thanks to everyone that helped out at the hospital this week. Love, Trent.

Thursday, October 18, 2007

October 18th

1st picture- cuddled up in my blankets, I was so cold
2nd picture- making homemade lemonade
3rd picture- making monster hands
It's been a crazy two days!!! My body does not know what it wants to do. Since yesterday I keep having fevers on and off. Yesterday they did a culture on my central line, it had a little puss on it so they are worried it is infected. Today nothing has grown on the culture so so far so good. This morning I woke up and felt very icky!! I started shaking really bad because I was so cold. My skin started to look very blotchy and when they pushed on my skin it took a while to recover (if that makes any sense). The nurse and doctors moved so fast to help me. They put me on a new antibiotic, I am now on 3 antibiotics and watched me very closley. It took a little while but I finally got warm and my skin looked better. The fever has not gone away, so I get ice packs all night to bring it down! My nurse went to flush my line today and take another blood culture. She was able to put fluids in but not get the blood out. We waited a little bit then tried again, it then would not even let her put fluids in the line so she thinks I had a blockage. So she put a medicine in the line to help break up the blockage (it was cool how she put it in). It took a few hours but eventually the blockage broke up and my line was good to go again. I am not really eating much, when I do it is sour stuff like lemonade, sour airheads stuff like that. Mom's face puckers up and she laughs at me but it's so good! Well that is my fun exciting day hope everyone is doing well.
Love Trent

Monday, October 15, 2007

October 15th

Well we are having fun sitting around and watching television. Not much is new. We have different little issues that arise almost daily but don't really know why. One day I react to a transfusion and the next day I don't. One day I have a fever and the next I don't. Lately it is that I have high blood pressure. I still won't eat or drink anything unless mom and dad force me to. My levels have hit zero this time around(finally) and have stayed that way for the past week. When they start to go back up we should be able to go home for a few days. That is still probably at least a week or two away. Now that I'm back to my normal self I'm having fun giving the nurses a hard time. They like it because they get to laugh and smile. Thanks Love, Trent.

Thursday, October 11, 2007

October 11th 2007

Today has been a day. I have to be on Benadryl now when I get platlets or blood transfussions becuase I am having reactions. Because of this I get a little mean but it only lasts for a few hours. Me and Mom today had fun we filled gloves with popcorn and candy corns and put them around my room. They look like big monster hands so cool. We decided to do something fun for the other kids in ICS by making them a goodie bag. It was so fun to pick out what I would put in each bag I had a lot of fun. The rest of the night I gave my nurse a hard time and teased her. I am still working on eating I am just not hungry, Mom says if anyone has any ideas about getting me to eat let her know!!!!! Talk to you soon.

Love Trent

Tuesday, October 9, 2007

October 9th

Well things are slowly getting better. I have been feeling better every day but I'm still waiting for my appetite to come back. Good news came today. Two 10 out of 10 matches have been found for bone marrow. One is a 47 year old female and the other is a 32 year old male. The doctors are going to submit the formal request to the 32 year old tomorrow since he is younger. The doctors do not think that a fourth round of chemo will be beneficial so we are moving towards the bone marrow transplant. The projected schedule as of now is that we will stay for the next couple of weeks until my levels start to come up, go home(unknown for how long), go back for ten days of TBI(total body irradation) to destroy my bone marrow, and get the bone marrow transplant on the eleventh day. Keep us in your prayers. Love, Trent.

Sunday, October 7, 2007

October 7th

Well the good news is that my fever has gone away for the past twenty-four hours. My eyes are feeling better and I'm starting to eat a little bit. They still have me on antibiotics for awhile hoping that the fever ws only caused by the chemo. The issue is that chemo. fevers usually are short lived and mine stuck around for about four days. Mom and dad are happy because late last night and today I have been more like myself and am talking and giving the nurses a hard time. Thanks for all the prayers. Love, Trent.

Thursday, October 4, 2007

October 4th

Well things have changed and I'm now starting to have some side effects. I've been running a fever for a few days and my blood pressure was high. I got nauseated last night but got through it. Right now my eyes hurt, burn, and I cannot take any light. They are trying to figure out how to get them to stop burning. Love, Trent.

Tuesday, October 2, 2007

October 2nd

Well I'm doing the same thing and not reacting like the doctors said I would. I'm got a much larger dose of one chemo and I was a little bit more mellow but that was it. I'm now getting a new more harsh chemo that turns my pee green. Again I'm taking it well and more like my normal self. On Friday they will give me another new drug that is supposed to make me sick like I have the flu. Of course that is what normally happens and I seem to do just the opposite. Other than that we are just hanging out in the room. Mom and dad are really getting sick of Disney because I have it on 24/7. Thank you, Love, Trent.

Thursday, September 27, 2007

Spetember 27th

Well we only have a few days at home but as you can see we are having fun. The new house has been nice, I could not believe how nice carpet feels. It's been a while since I've been able to walk on carpet. It has been fun to play in the backyard. We are supposed to go back to the hospital on Friday(09-28). Dr. Barnette wanted us back earlier but mom talked him into an extra day. The test results were not good and the next round is supposed to be extremely hard. Keep us in your prayers and thanks to all that made it possible for me to come home to the house. Love, Trent.

Tuesday, September 25, 2007

September 25th - home

Well they took me in for an unanticipated bone marrow aspirate yesterday and then sent me home. The doctors only want me home for a couple of days and we are supposed to go back on Thursday(09-27). It appears I will be starting a very nasting round on chemo when we go back. Thank you for all the help on the house. I spent last night at grandma and grandpa's because the house was not ready but mom and dad stayed up most of the night and I get to sleep in the new house tonight. Thanks to everyone that helped make it possible for me to come home to the new house. Thank you and please continue to remember us in your prayers. Love, Trent.

Friday, September 21, 2007

September 21st

Well sorry that I've not written for awhile. Mom and dad have been at the house every night working late trying to get it ready for when I get to go home. Nothing much new this week. I was not eating for the first few weeks so they gave me an appetite stimulant and it worked really well. I have gained nine pounds. It is a lot since I had not gained anything in the past year. Three more days and it has been a month for this stay. We should be going home within a week hopefully. They tell us that we should only be home for about seven days this time before we come back. Thanks to everyone that has helped with the house. It is amazing that almost everything was done within a three week period. Thank you. Love, Trent.

Friday, September 14, 2007

September 14th

Well it's been awhile since we wrote anything. The past week has been uneventful. I still have my black eye but it is turning more yellow. The nose bleeds have come back and been a nuisance this week. Aunt Syd and Nathan came to visit and left guitar hero with me. Dad played it for the first time last night and we had fun. Mom and dad have been busy at the house this past week and have not been getting much sleep. Things are almost done though. Thanks everyone. Love, Trent.

Sunday, September 9, 2007

September 8th - ride day

Well today started early with the ride. I received a phone call from the group before they left and told them "thank you." There was about thirty motorcycles that went on the ride that took most of the day. Thank you for everyone that organized, participated, and donated. We don't know how to express our appreciation to all those involved. Love, Trent.

September 7th - con't

Well Nate came to visit and we started to sword fight with rolls of construction paper. During the fight I tried a "duck and spin" move but unfortunately there was a chair in the way. I ended up hitting my head and giving myself a black eye. I don't think the doctors think it was very funny because they keep coming in to look at it. Love, Trent

Friday, September 7, 2007

September 7th

We have to thank everyone from the new ward that showed up to finsish the demo and prep work on the house. Everything that we wanted done, plus a few extra things, have been completed. It's amazing to see what was done in one week. Now if things go as planned everything will be put back together before Trent comes home. Thanks again to everyone, we don't know how to express our appreciation. ~ Jeff & Tiff.

update volunteers

love it!!!!! Everyone is so wonderful. Thank you everyone, Jeff & Tiff are look'n great and they're feeling the love. Hope to see everyone at the ride in the morning. I-15 and Bangerter 0830-0900 to register. Some of us are carpooling up to Morgan to buy lunch and hear the raffle, call if you need a ride. Jenni 254-6080 or 712-5494 We will update the blog with any other fun service opts or you can get on the email list( just for Trent) @

Thursday, September 6, 2007

September 6th

Well Melissa Fackrell came to sit with me the other night. Apparently she had been warned that I get a little wild late at night so she came prepared. We had a lot of fun and when I started to get wild she wrapped me in bubble wrap and masking tape. Thanks everyone. Love, Trent.

Wednesday, September 5, 2007

September 5th

Well the move is done and when I go home I get to go home to our house. I just finished the last chemo dose for this round. One more round done without getting sick. All of the prayers and fasts have helped me get through the chemo. Now I get to sit in my room while my levels go down and then wait for them to come back up so I can go home. It should take about three weeks. Thank you. Love, Trent.

We don't know how to thank everyone that came to help us move and demo the new house. We we definetly impressed at what ten guys can do when they try to "one up" each other. The tile did take a little longer than fifteen minutes to remove but we won't tell anyone. Thanks again for all who helped out. ~ Jeff & Tiff

Saturday, September 1, 2007

September 1st

Sorry it's been a few days since we have written. We have been trying to take in all the new information. Mom and dad say I'm a totally different kid since they took me off of the anti-nausea drugs. I'm now on only one medication for nausea instead of four. I'm happy, hyper, and do not throw a fit when I have to get up every two hours. The best part is that I have not been sick and am handling the chemo for now. The paperwork for the bone marrow transpant has been started and should take about eight weeks. We will complete this round of chemo and then move to the transplant. Please remember me in your fast tomorrow. Go Cougars. Love, Trent.

Wednesday, August 29, 2007

August 29th - evening

Well today has been a day of disappointments. They have taken me off of all but one nausea drug because of what happened last night. We will see how I handle the chemo tonight without the other drugs. Last week there was a discrepancy with the bone marrow evaluation so they took another test this week. This weeks results showed the leukemia cells have risen significantly. We have been moved to the "high risk" catagory and a bone marrow transplant is needed now. The process has already started and a pre-screening has already found several possible matches in the donor bank. We meet with the bone marrow transplant team tomorrow and will know more then. It takes about two months before the transplant takes place. We will continue with this round of chemo and the next one is supposedly really nasty.

We are having a special fast this Sunday and would like everyone to remember me in your fast. Love, Trent.

August 29th

Well to be honest things are not going very well right now. Yesterday we came back to the hospital and I had a couple more tests before coming to my room. I really did not want to come back but I pretended that I did pretty well. I fell asleep pretty quick from the nausea drugs and the fact that I did not sleep well the night before. Chemo started last night and I get pretty ornery and difficult. Last night was a bad night because the medication made me hallucinate and I was up all night screaming about the spiders crawling on me. Hopefully the doctors can figure out what is making this happen because it is new. Keep us in your prayers please. Love, Trent.

Monday, August 27, 2007

August 27th

Well today went okay. My white blood count stayed the same at 300 and all the other levels are starting to go down. I had another bone marrow aspirate (removed bone marrow) and a lumbar punch today. Mom took me to get a shake after we were done. We are tenatively scheduled to check back into the hospital tomorrow afternoon. They told us to expect about the same length of stay as the first time. That means it will be about five weeks. I'm not very excited about going back. Talk to you all later. Love, Trent.

Sunday, August 26, 2007

August 26th

Well we are getting ready to go back into the hospital. I was not able to do very much at all while I was home. The U. was jealous so they sent a visitor, and I was able to get a family picture taken. Thanks to all. Love, Trent.

Saturday, August 25, 2007

August 25th

Well not much has taken place in the last few days. My levels stayed the same as the beginning of the week so we don't know what that will mean on Monday. Monday afternoon I go in for another bone marrow aspirate and possibly a lumbar punch. We have been told that we will probably go back into the hospital on Tuesday. I'm don't really want to go back but at least I get room service again. Mom has been trying to pack since they will be moving while I'm in the hospital. I know that some of you wanted to visit before I go back to the hospital but my levels never came up and are actually dropping so I will not be able to have any visitors. Hopefully next time I can see some people when I come home.

A motorcycle ride has been organized in my behalf. It is planned for Saturday September 8th. Registration is from 8:30 - 9:00 at the Exxon/Common Cents on Bangerter Hwy and I-15 (exit 289) The ride leaves at 9:00 and is planned to be about four hours long. If anyone wants to attend or get more info. you can call Mike G. 209-7062 or Mike D. 209-9675. Thank. Love, Trent

Thursday, August 23, 2007

August 23rd

Dr. Barnette called with good news. The results are good. He said the the bone marrow had no more than 10% Leukemis cells. So I will continue the way we first originally thought. I will go in the first of next week and have another bone marrow aspirate and lumbar puncter. Then the next day I will be admitted and start the 2nd round of chemo. I am sad I have to go back but excited to be waited on hand and foot, Mom refused to do that at home, imagine! Well I am glad there is good news and hope everyone is doing well.

Love Trent

Wednesday, August 22, 2007

August 22nd

It was a very hard night for me! I woke up every hour untl 2:30 throwing up. It was not fun. Mom laughs because everytime I threw up I had a smile on my face and I made a cute comment. I hope nobody else is sick out there!! The results from the pathologists have not returned today so hopefully tommorrow we will find out! Have a great day!!

Love Trent

Tuesday, August 21, 2007

August 21st

Well the test results have come back and we still don't have a definite answer as there are competing test results. They run my bone marrow through two tests, microscopic and flow symetry(or something close to it). The microscopic test showed 5% leukemia cells left. This is not the best thing as the first round of chemo should have killed all of them. The flow test showed 17% leukemia cells left which is very bad. Because there is such a discrepancy the test have been forwarded to a pathologist for review and determination of which one is correct. They are leaning towards the 5% but we will find out what the pathologist says tomorrow. Either way we now will probably have to wait until next week before we go back to the hospital. I have been doing good but tonight I began feeling sick and threw up. I hate to throw up. Mom and dad are hoping I don't have the flu. Well will let everyone know what we find out tomorrow. Thank you again. Love, Trent.

Monday, August 20, 2007

August 20,

Today started so early I was up by 6:45 to go to the hospital!! They tested my blood and my levels went down I am now at 300 my body is all confused!! Even my platlets and red blood cells are going down. Dr. Barnette says it can be two things 1- we came home when my counts were very low so they are still coming up slowly and we will start chemo when they are up which he thinks will be 1 wk or 2- the leukemia cells are back with a vengence and waiting for them to come up will never happen so they will start chemo this week. I am hoping for another week it just sounds better. I did great with the bone marrow aspirate. Mom came in the room with me when the Dr. put the sleeping medicine in, I lasted for not even 1 sec. Mom was shocked, she said a couple of times "Dude open your eyes" she thought I was teasing like I so often do. But I tricked her I was totally asleep! During the procedure I guess I was moving around a lot & the Dr. didn't like it so he put more sleeping medicine in me, then I gues I got the hiccups and he put more medicine in me! So I was sleeping for a very very long time. The nurse in recovery told me I set a new record for sleeping the longest after a procedure. Love you all


Thursday, August 16, 2007

August 16,

Well my levels have stayed the same they are at 400. So I will not be going back to the hospital until next week. On Monday I go in to have a bone marrow asparate. It is where they will test the bone marrow to see if the leukemia cells are gone or still there. If my levels are high enough they will do a lumbar puncture to make sure the leukemia is still out of my spinal fluids. So YAHOO we get to stay home another weekend,WE are all so excited!!!

Wednesday, August 15, 2007

August 15th

My blood tests from Monday came back and showed that my counts are rising but are still not where they need to be. Once they raise I get to go back to the hospital. They took blood tonight so we will see where we are at tomorrow. Tonight, Sister Atkinson brought me a surprise. It was the true school's t-shirt with signatures from the BYU football team. I want to thank Sister Atkinson, Bishop Buckner, Kellen Fowler, and the rest of the awesome BYU football team for taking the time to sign the shirt. The gift made my night. I will not be able to attend any games this year (even though we have season tickets) but I now have something to remember the season. This new shirt will not be worn as a night shirt as my other one was. I have more respect for it. It is going to be framed and hung in my room. I'm not sure who was more excited Brad, mom, or me. There will be plenty of cheers coming from my hospital room. Thanks again for everything. Love, Trent.

Sunday, August 12, 2007

August 12,

Today was great. I wanted to go to church but Dad & Mom said no there was way to many germs. Tonight me, Brad and Nathan went crazy playing, we got in our pillows hopped & ran around in the hall. After we settled down I noticed my dressing was coming off of my central line. So Mom for the first time on her own changed my bandage she was very nervous, but did great. Everything is going well we noticed a little puss by my central line todady so we will just watch it. Hope everyone has a great week. Thanks for everything.

Love Trent

Saturday, August 11, 2007

August 11th

Well I've been home for a couple of days now and am having fun. It is fun to play with my brothers and be able to walk around the apartment. The days are short because I'm trying to catch up and play with all the toys I have. No more staying up late now, I have to go to bed with my brothers. I'm usually pretty tired and the first to fall asleep though. My home nurse came last night and talked with mom and dad. She will come two times a week and take my blood. When one of my levels rises we have to go back to the hospital for my second stay. Hopefully I get to stay home for about a week. Thanks to everyone. Love, Trent.

Thursday, August 9, 2007

August 9th

After 5 1/2 weeks I'm finally home!!!!! I was so excited I kept jumping up & down on my bed yelling "thank you thank you". I was released about 1:30 p.m. and got home about 3:00. I told Mom on the way home "It's good to be back in the good life"! I was getting very tired of the hospital but not the nurses they are the coolest!! I will be home for about 7-10 days or until my levels go up to over 1000. Then back to the hospital for the 2nd round of chemo. I will have a home health care nurse come on Monday & Thursday to take blood. Mom will change my dressing and Dad & Mom will watch for anything not normal. My levels are still very very low so right now I can't have any kid visitors. Hopefully soon I can! Basically I will be confined to my house instead of my hospital room. I am so excited to be home to play with brothers and be some what normal. My brothers are very excited also we will play & have so much fun!!! Thank you all for your prayers and support.

Love Trent

Wednesday, August 8, 2007

August 8th

Today has been about the same. My levels are still at 100 , platlets and red blood cells are holding their own. Dr. Lemons came in today Mom asked how much longer we would be here he said that we might go home tommorrow that my levels have to go up 2 to 3 days in a row. So tommorrow when I wake up we will find out if I can go home for a week. I am so excited I started to jump up and down on my bed and saying "Heavenly Father please let me go home please!" I can't wait to go home to play with my brothers and have more room to move around!! Thanks for everything.

Love Trent

Tuesday, August 7, 2007

August 7th

Well some of my levels are rising but my white cell count is still in the basement. One doctor told us that it may be another two weeks to a month before we come home. Mom was not happy with that answer but there is nothing we can do. No fever so today is a good day. I'm still happy but mom and dad can tell that I'm getting worn down with the long stay. As you can see I still have my fun attitude. No I haven't switched my loyalty from BYU but the shirt was free and works to sleep in. Thank for all the prayers, Love, Trent.

Sunday, August 5, 2007

August 5th

Well tomorrow is five weeks that we've been in the hospital. My levels are not sure what they are doing, one day I'm at 100 and the next day I'm at zero. I cannot leave my room until I get to at least 500. I've been having fun with Grandpa and Grandpm DuVal. Aunt Michelle stayed with me last night, we had fun. Thanks for everything, Love Trent.

Friday, August 3, 2007

August 3rd

Well my levels are still at zero and my platelets went down today. I don't think my body knows what it is doing. My Grandma DuVal , Grandpa DuVal, Aunt Michelle, Uncle Jeff, Zach, and Haley all came from Oregon to visit me today. We have been having fun.

Thursday, August 2, 2007

August 2nd

Today my levels actually went down to zero, Mom just rolls her eyes! My platelets went up a lot today. I got a blood transfussion today and I forgot I was hooked up to it & kept wanting to walk away from it yikes! Tonight I scared the poor tech, she hates snakes and I kept teasing her with the stuffed snake I have she had to leave the room. It was so funny. Goodnight

Love Trent

Wednesday, August 1, 2007

August 1

Today was the same as yesterday. My platlets are going up my levels are staying the same and are still low. Grandma Hansen came up to play with me. Nathan started Kindergarten today so Mom stayed with him, and Dad went to work. The nurse did a bad thing today. She came to weigh me and let me go out of my room for a few seconds Mom was not happy, me and Dad just kind of looked at her like she was crazy. Let's just say I won't be able to do that again until my levels are up. Hope everyone is doing well and having a great summer! Have fun & play hard for me.

Love Trent

Tuesday, July 31, 2007

July 31st

I will never forget July 2007, now that it is over I can say it went fast ha ha. My counts today are still low but my platlets are going up by themselves so that's good. But it doesn't mean I will come home any sooner just means I do not need a platlet transfussion. I had a bloody nose this morning for about 1 hr. It is so boring to have a bloody nose, I sit there and let Mom or Dad pinch my nose but at least we got it stopped! I started school today it was just for about 20 min and I was not very happy with Mom but she thinks it will do me good! Thanks for all the prayers and support! Just a little note we have gone back to July 21st and replied to hopefully everyone Some of the blogs we answered in the most recent writings so the old ones we didn't reply to hopefully that made sense. We did not have a computer and were very busy the last few weeks but now we will keep up!!

Love Trent

Saturday, July 28, 2007

July 28th

Well not much is new today. My levels only stayed at zero for one day and then went back to 0.1. Some of you have asked about outside the family bone marrow tests. At this time they will not be doing a bone marrow transplant because neither Brad nor Nate are a match. I'm getting a little fed up with being confined to my room. I have a calender that I wrote "going home" on the 31st. The nurse saw it and made me sad because she told me that there was no way I would be going home then. The doctor stated it would be "rare" if my levels came up and I was able to go home this coming week. So I still have a couple of weeks before I can get out of this room. We know of 23 heads that were shaved this week. Thank you everyone. Love, Trent

Thursday, July 26, 2007

July 26th

Hello everyone, I have been doing fine the last couple of days. My white blood cell count officially hit zero yesterday. I now have no immune system. The last few days have been a little hard because I missed several family parties and the first day of school. The test results came back and neither Brad nor Nate are a match. The plan is to complete five rounds of chemo. and hope for the best. Sorry we haven't written back much the last few days. Things have been busy and a little difficult. Thanks again to everyone .
Love, Trent.

Tuesday, July 24, 2007

July 24th - no hair day

Well today was the big hair cutting family party. Everyone went to grandma and gramdpa's house and shaved their heads. Sixteen heads were shaved today plus all those who shaved at home. Nathan had a hard time and only cut his short but that is okay. Today I hung out with grandpa. He got his head shaved and then came to the hospital so dad could get his head shaved. Thanks for all the support. Love, Trent.

Monday, July 23, 2007

July 23rd

My levels still don't want to drop. The nurses were worried because I went to sleep at 9:00 pm not my normal midnight.

Sunday, July 22, 2007

July 22nd

Well another day in the hospital. My levels still did not reach zero but the on-call doctor said that it was not really a big deal (mom and dad were starting to get worried). My mom bought me a pink shirt that has the saying "chicks dig pink" and its true. All of the nurses have been coming to my room to see me and my shirt. Because I still cannot leave my room they brought the sacrament in and a primary lesson. Thank you. Love, Trent.

Saturday, July 21, 2007