Yesterday I woke up and my stomach hurt so bad so I fell back to sleep. When I woke up I said to mom "well this is promising" I felt very good. Mom asked if I wanted to go on a walk so we did. It was fun to be up and moving. We went out in the hall and watched the candy machine man stock the cany machine. It was fun and I told mom that I wanted to use a dollar and get a candy. Yum yum. Mom and Dad met with the doctor, mom will tell you about it. Today has been a hard day, my stomach has hurt very bad! Hope everyone has a good day.
Love Trent
Trent is an amazing boy, we have learned so much from his sweet spirit. It has taken a day to think about what we could say to everyone. We knew going into this second bone marrow that Trent's chances were not as good as the first bone marrow but we knew Trent would fight and we would be there helping him along. The first meds they tried weeks ago were what the doctors said "the best drugs they had to help fight gvh". The drugs did help with the skin and liver gvh but not with the gut gvh. His gut is no worse than it has been but it is also not really any better. So right now there are two drugs that they will try. The first one is C23 antibody it attacks the t-cells. It will be given once and then we will wait, it could take weeks to see results. If it works the second med will not be given, if it doesn't work the second med I can't remember the name will be given and we wait again. The problem with these drugs is that infections can occur just like with the other drugs we have used. Trent has been very lucky to not have had any serious infections and we are hoping his body will continue to do the same thing. The doctor was very honest with us and told us these drugs might or might not work. If one of these drugs works Trent's body will be able to mend and we will bring him home. If these drugs do not work or Trent gets a serious infection we will lose him. We have not lost hope and are very thankful we still have options out there. We are thankful for the doctor's and nurses and continue to pray that they will have the guidance to see what is best for Trent. But most important we know that our Heavenly Father has a plan for Trent, whether he keeps him here on this earth or takes him home till we can be together again. We as a family have faith and cling to this knowledge. Thank you all for the prayers, support and love.
Love Jeff & Tiff
Subscribe to:
Post Comments (Atom)
10 comments:
Duval Family-
I know I can't say anything that you haven't heard before, but we want you to know that we still pray for Trent and your family several times a day. I know, without a doubt, that the Lord hears our prayers and even though he may not answer them the way we like or fast enough, he does what is best for us.
Your family continues to amaze us and your example of endurance is inspirational. Jeff and Tiff- I hope you know how much everyone loves your family and thinks of you often. The things you have had to sacrifice in the last few years makes us appreciate every blessing that much more. I know that Heavenly Father will continue to bless your family and I hope you can continue to find the strength to keep up this fight.
We love you!
Chad and Kristin Doyle
Trent,
You are simply amazing and you are such an inspiration to countless people because of the way you are fighting this disease! I am so sorry you have to feel so much pain! I wish I could take the pain away from you! We all are praying the C23 antibody will work and you can get feeling better and get out of the hospital! We love you Trent! We pray for you and your family everyday!
Love, Shelli
We love you! Our thoughts and prayers are always with you. All of you are amazing examples of faith and endurance! We continue to hope for the best. Please let me know if there is anything that we can do for you...
Tren,
Mike and Amber have told us what an amazing boy u are. I just wanted you to know that you have so many people that love you and pray for you every day, even people that don't even know you. That to me is an amazing thing to see how you have touched so many lives. TAHNK YOU SO MUCH! We will continue to pray for you.
have a great day Trent,
The Warners
I am so sorry for what your family is going through. We all know that god has a plan even if it is not known to us at times. I always read the updates and I am always truly amazed by your faith that your family has. May the lord bless you all and give you some extra strength.
Lisa
(dispatcher)
Dear Duval Family,
How grateful we are to you for your example of faith and endurance. We can't even imagine the strength that you have had these past few years - you continue to press forward and with such grace and power....you are just amazing. We will continue to fast, pray and pray even harder for all of you.
We will pray for the doctors and nurses, as well as the medications and especially for Trent's little body - that it will have the strength, power, faith and endurance needed to fight through this next battle.
You are such a brave family - and have endured so much - it just doesn't seem fair - but remember - you aren't alone - You have so many people, families, friends and even strangers that are praying for you!And mostly - Heavenly Father is aware of you, your family and your needs...what a comfort that is!
I was reading the Ensign this past week and this little quote brought a smile to my face and instantly I thought of you...the Duval family,
"I’ve learned some of life’s most valuable lessons..to greet each day with enthusiasm and eagerness; to pursue adventure despite obstacles; to delight in new discoveries; to enjoy spontaneous fun; to regard the eating of toothpaste and the emptying of sand-filled shoes on the carpet as minor problems, not major catastrophes." Wanda I. Allen August 2008 Ensign
The reason I thought of your family is this....the 4 wheeling, mountain trips, flying kites, playing in the yard, snowy days, baking cookies, dressing up, pulling faces, soft air gun shoot-outs, playing pirates riding your bike, taking walks, Dance-Dance, SingStar, 100 day parties, chocolate fountains, smelling your lucky charms, birthday parties,even "poop!", ....tricks on nurses...the list goes on and on and on....and even made fun out of a nose tube gone bad (Tiff you amaze me!) Your humor has not stopped - your upbeat attitude and desire to not waste a minute...how inspiring!
"I" have learned some of life's most valuable lessons, by watching all of you! Keep up the faith! Keep up the fight! We are all here cheering for you! What a blessing your family is to us!
We love you all!
Trent,
You are an amazing kid!!!!!!!!!!! If anyone can beat the odds it will be you. Know that you and your family are always in our thoughts and prayers.
Love,
The Carrigans'.
we love you!
Trent,
Just a short note from some friends in California. We are praying for you and hope you feel the presence of the Lord close at hand.
Trent,
We are some friends of your Mom. We've been reading your blog for a very long time. We know that the Lord will be with you as you are going through this experience. Thank you so much for keeping up this blog and giving hope and inspiration to everyone. You are a true champion!
Post a Comment