December 31st: day +44

Well yesterday my temperature went down and things were looking good to go home today. But then the fever came back so dad and I will celebrate New Year's together in the hospital. We are so thankful for the support and help that we have received this year. There have been so many blessings. We are praying, like everyone else, that the New Year will be better than the last. Love, Trent.

UPDATE: Well come to find out my temperature did not go back up. A different doctor had a different set of rules about going home than the doctor that saw us yesterday. Dad had a "discussion" with the nurse practioner and it ended up with me being released. Mom and dad made a new record on how fast my room could be cleaned out and us checked out. I got home about 5:30 PM. Love, Trent.

December 29th: day +42

Well I'm still in the hospital and it looks like it will be at least another day before I can go home. The good news is that nothing has grown in my blood cultures but the bad news is that my fever has not gone away. They will not let me go home until the fever comes down and we find out why it went up. I wish I was home but things are not that bad here right now. At least I was home for Christmas. Thank you. Love, Trent.

December 27th day +40

Christmas was awesome. I had so much fun at home with my family. I was very spoiled and loved!! I hope everyone had a wonderful Christmas! I was able to go play in the snow last Friday. I begged mom for days to play in it she finally gave in and bundled me up! I went to clinic yesterday my ANC was up to 4000 that is so good. The Dr. thinks I am doing great and very happy. Today was a fun day we played all our new toys today. Mom is still building all our lego toys we got but she loves it! Me, Dad, Uncle Alan, Brad & Nate all went out tonight and played air soft guns. It was so fun but very very cold. About 6:30 I came in from outside shivering, I had a fever of 37.7 celcius. At 7:30 my fever went to 38.3 celcius so we called the hospital and I have to go in tonight. We hope I can come home tommorrow but we will see. They will run tests and try and get my fever to go down. I hate the hospital and was crying when I found out I had to go back. Well talk to you later.

Love Trent

December 20th day+33

Wow, it's been a fun week. I am so glad to be home I am playing with Brad & Nate and we are having a blast. I am very excited to be home for Christmas, it's going to be a great Christmas!!!!! I went for my first clinic visit on Tuesday and everything checked out ok. My platlets and red blood cells are holding their own. I still throw up 1-4 times a day but they told me that I would probably be doing that for months, so I am ok. The Graft vs. Host has not shown up yet but they will continue to watch closley. They are making me take one more cyclosporine pill, they are capsules and I hate them also I am back on my Septra pill which is to prevent phenmonia. So on average I am taking 16 pills a day, that is the worst about being home I can't get the meds in my central line I have to swallow!!! Other than that I just can't wait for Mom to cook a turkey so I can finally get a drumstick! Well hope everyone is ok and doing well. Merry Christmas

Love Trent

December 13th: day +26

I'M HOME!!!!!!! The doctors came in this morning and said we are going home. I could not wait. I'm still throwing up and will have to be on TPN(IV food) at home but it is HOME. The pictures are of from the first day I entered the hospital on July 2nd and today as I left. Hopefully I will never have to go back. I will have several appointments per week but they will all be out-patient and no more long stays. This stay was five weeks to the day. I still have to be cautious and cannot have lots of visitors or be around crowds. Please call before stopping over and talk with mom and dad first please. We will continue to keep the blog updated. It's been a long five months, thank you for everything that has been done. Love, Trent.

December 12th day +25

Hooray, today my ANC was 800 today so that means I engrafted yesterday. Brad won the bet, he is so excited. I am so ready to go home. I am doing ok taking my pills, I usually throw up right before I take them and shove them down the second I am done throwing up. It's not a wonderful system but it works. Grandma & Grandpa came to sit with me today cause mom was home with my aunts cleaning the house for me to come home. She says the house is waiting for me so I am praying tommorrow or Friday. Tonight we had a scare the day nurse told me I could eat lettuce but we have been told to not eat any lettuce cause there is to many germs and fungus on it. I ordered it cause she said I could but when I got it I had a feeling not to eat it so I didn't. Mom & Dad were very happy I did not eat it and hopefully we get that worked out. Other than that everything is ok. Thanks for everything.

Love Trent

December 11th: day +24

I did it. My ANC was 900 today. If my levels are over 500 tomorrow then the doctors will consider me as being grafted. Today the focus was to get me to take (and keep down) my medications. It has been okay so far, some progress and some work still. Well it looks like Brad is going to win the engraftment pool. The nurses have been "training" Mom and dad so that we can leave as soon as the doctors give the okay. Yesterday I was playing with some bath foam soap and tried to be Santa. Keep up the hope. Love, Trent.